Saturday, January 28, 2017

Another Day, Another Miscarriage

I'm right back where I was last spring, just four weeks farther along than last time.  Yesterday we saw an OB in Kauai and the baby hadn't grown since six weeks and three days and there was no longer a heartbeat.  R & B were there with and just looking over at them and seeing B smile at me and give me a big hug made the whole situation survivable, but I'd be lying if I said I wasn't devastated, disappointed, sad, and, frankly, really f-ing angry.  I would just rather not repeatedly get pregnant only to find out the pregnancy isn't viable, and this one feels worse because we saw a heartbeat and I'm now 10+ weeks with *no* signs of miscarriage.  In fact, my HCG yesterday was 25,000 so clearly my body has not yet caught on.

Given how high my HCG is, the OB here wants me to come back in for a scan with their radiology department (better equipment) to confirm it isn't a molar pregnancy.  My Colorado OB (with whom I've spoken several times) thinks this is highly unlikely, but of course I'm going to go in to confirm.

Most of all, I feel foolish.  Foolish for getting my hopes up, foolish for thinking this was our second rainbow baby, imagining flying home mid-summer instead of next winter so that I could have this baby at home, worrying about the logistics of getting meds, etc.  None of it matters and why haven't I learned my lesson about thinking things will work out?

I am, of course, already thinking about what is next.  I'll take misoprostol again to induce bleeding so that everything can be "take care of" before we leave the U.S. (on February 12th).  And then what?  I know in my heart I'm not done - I want to have another baby.  But I am beginning to wonder if that is wise.  I'm 36 years old.  I have POF.  I now have a history of recurrent miscarriages, presumably due to chromosomal abnormalities.  I have complicated pregnancies.  I keep thinking: "Fool me once, shame on you; fool me twice, shame on me."

One silver lining to all of this is that, so far, I feel much better emotionally than I did last spring.  Even with getting my hopes up, I knew better than to tell many people, make plans, or really give this pregnancy much credence.  I don't know if that is helping or the fact that I'm with my family in Hawaii but I don't feel the darkness overwhelming me like I did last spring.  Who knows?  It's too soon to tell how I'll feel in a few days, but I'm trying to keep perspective and stay as positive as possible.

So that's the (depressing, frustrating, infuriating, disappointing) update from here.

Sunday, January 8, 2017


A double rainbow with my rainbow baby beneath.  I'm choosing to see this as a good sign.

We have a lot going on over the past two weeks, much of it wonderful.  We celebrated Christmas (it's difficult to believe that was just two weeks ago), B's birthday, and the New Year, we packed up our house and moved out, moved our cat to my parent's, and left the mainland for Hawaii.  In the midst of all of the good, there is the anxiety that comes with early pregnancy and all of the thoughts that are always in the back of my mind but are front of mind this time of year on the anniversary of Q's death and the day I gave birth to her (Was she "born"? What is the the right word?).  I thought constantly about Q over the past few weeks and reflected a lot on everything that has happened since December 2013.  We didn't have the opportunity to do anything in particular to memorialize the day other than to light a candle and talk about her and what happened (and to think about how lucky we are to have B), but I feel the heaviness of the season even here in Hawaii.

"The Japanese Art of Grieving a Miscarriage" appeared in the NY Times this week and I love that the culture embraces and encourages publicly honoring babies who are never born.  I'm going to keep my eyes open for a Jizo when we are in Japan and try to bring one home to honor both Q and the little baby we lost this spring.  There is something so comforting about an object -- when Q died, the hospital gave us a box and inside was a tiny bear.  It isn't anything special, but I have slept with it every night since we left the hospital.

I've been particularly upset this week about some favorite bloggers (who I do not know personally) who just lost their son who was born prematurely.  Their grief and sadness and loss is so palpable in the photos and how courageous of them to share something so personal.  For whatever reason -- this time of year, being pregnant and emotional, or just the fact that their situation is heartbreaking -- I find what they are going through so upsetting and I wish I could reach out to them.  I have no idea what I'd say, but I just want them to know they aren't alone.

All of this just serves to remind me that, three years out from losing Q, I still acutely feel her absence and it is front of mind, more so in December and January than is typical.  And even in the midst of an exciting adventure and the possibility of another life, I'm grieving.  Still.


I did find an OB in Kauai and have an appointment at the end of the month.  They have no perinatologist or MFM on the island and they don't do "level 2" ultrasounds as they called it (e.g., the 12-week anatomy scan) so I'm going around 10 weeks for another ultrasound and the Progenity chromosomal test.  If I need additional monitoring or testing, we'll spend a night on Oahu before we head to Sydney.  At this stage with Baby B, I had weekly ultrasounds (for my peace of mind). I'm trying my best to be Zen about this -- what will be, will be.