October: Pregnancy and Infant Loss Awareness Month

As many of you know, October is Pregnancy and Infant Loss Awareness Month.  Outside of this space, I've been relatively quiet on this topic, but I recently decided it was time to talk more openly about it, including on my other blog.  I just published this post and wanted to share it here, too.

I'm holding you all and your babies in my heart today (and always).

36

 Today I turn 36.  After Chelsey's death, I promised myself I would celebrate birthdays every year from here on out, so I'm doing it.  R brought my breakfast and coffee in bed, I read to B all morning and came to work late, and tonight we are celebrating with friends.  I'm trying not to let myself dwell on the fact that even if I didn't have POF/POI as a diagnosis, I am now firmly in the "advanced maternal age camp."

Things have slowly been improving in terms of emotions and hormones.  I appear to be having another normal cycle (are you sick of hearing about my cycles yet?) and I'm feeling good.  I found a nurse practitioner who specializes in menopause in Denver (Cece Huffnagle) who is fantastic and has been incredibly helpful.  We talked through making sure I'm comfortable (e.g., stopping hot flashes, helping with dryness, regulating the emotional swings) without preventing the possibility of pregnancy.  She prescribed a cream for me to use that is super low dose and has helped and also is having me take progesterone every day from ovulation until cycle.  If, miraculously, I fertilized an egg, I likely wouldn't be producing enough progesterone to support the pregnancy so this would help.  There isn't any harm in taking it, so I'm doing it.  And I'm still continuing with all of the herbs and supplements.

"Kiss. Pumpkins."

We are slowly planning our trip!  We leave for Kauai on January 2nd.  It's amazing how much more tolerable coming to work is each day now that I have an end date.  I'm also taking my time in the mornings, reading longer with B, hanging out for a bit with her and our nanny (who I love), and having coffee with R.  Anyway, that is the not-so-exciting update from here.  I'm so glad it is fall.  B will be a flamingo for Halloween (she is obsessed) and loves kissing pumpkins (on anyone's porch or in anyone's garden).  She has so many words and she constantly amazes me with the new phrases she says.  She's obsessed with reading (particularly Toot & Puddle, Olivia, and "Higher Higher").  I couldn't love this girl more!

September, Sadness, and A Year of Travel

It's been six weeks since my last post and there has been a lot going on.  Frankly, there has been so much going on in our lives that I haven't had much time to dwell on my wacky cycles and getting pregnant and it has been a welcome break from the subject.  To briefly mention it, I've had two more cycles, one that was 35 days and one that was 19.  I don't think I ovulated either cycle.  C'est la vie.  I feel fine and haven't been having any menopausal symptoms, so I'l take it.

Two things have dominated my life in the last few weeks:

First, my best friend died.  I don't know how to share this news without being blunt.  In a period of my life that seems to be marked by grief (as well as by extreme joy), this is yet another example of how life can be so incredibly cruel.  At the same time, her death is a reminder to live each day to the fullest.  Each night when I read to B and rock her to sleep, I smell her head, kiss her cheeks, and tell her how much I love her and relish those moments because Chelsey doesn't get to do that to her little ones anymore. It breaks my heart.  She was the first person with whom I shared my infertility news, the first person at my side after Quinn died, the only person other than Rob who attended ultrasounds during my pregnancy with Blythe, and the friend I visited for coffee immediately after my miscarriage this spring.  We've been through so much together and I don't quite know how I'll get through more without her.  But I know I will because she was the toughest lady that I know and I'll use that as my inspiration.

I'm not particularly religious.  At times like this, I really wish that I were.  Chelsey's father passed away a year to the day before Quinn.  She always talked to me about how Quinn was in heaven with her Dad and he was talking the best care of her for me.  When I got pregnant this spring again, she said "thanks, Dad and Quinn, for sending Darcy another baby."  And now the only comforting thought I have about Chelsey is that she is with her Dad (who she missed dearly) and with Quinn.  I know she believed that she would be, so I'm going to believe it, too.

This photo is of me and Chelsey after our marathon in June (I'm on the right).  She was the kind of friend who would agree to run a marathon in 6 weeks because you had a miscarriage and need something to work toward.  This won't be the last time I mention her on this blog, but that's all I can say for now.  I miss her dearly and keep waiting for her to text me about our next long run or dinner with the kiddos.

Second, we have made a momentous decision: we are taking 2017 as a year to travel.  We have booked tickets, departing January 2nd, for Kauai.  From there, we'll head to New Zealand and Japan and then to Europe.  It's a crazy decision, but it felt like the right time for both me and R in terms of work.  I'm desperate to spend more time with B and with R.  It's been a tough couple of years and it will do us some good to relax, travel, spend time together, and just enjoy life.  We aren't putting ourselves in any financial hardship by doing this trip and we are so excited.

Given that we are all acquaintances via the Internet, this probably sounds insane and like something I'm making up.  I'm really not.  I will be blogging about the trip on my regular blog, which you are all welcome to follow (although we aren't leaving until January): www.darcyeden.com.  I just ask that you please respect the fact that I talk about Q and infertility in a very different way in that space (which is not very much - I'm not ready) and REALLY do not want this space revealed on that site.

It's hard to be joyous about this adventure giving Chelsey's death.  It's actually astonishing to me how differently I'm experiencing grief about Chelsey as compared to Q, but I think that is a topic for another post.  I haven't wrapped my head around it yet.

Hug your husband, wife, partner, parents, family, littles, etc. extra tight.

August Update & Pregnancy on HRT

Summer is moving along here.  We've taken a few weekend trips in Colorado and have another one coming up next weekend.  It's been so fun to enjoy the beautiful weather, the mountains, swimming, gardening with B, and generally just watching her become a little person.  She has started using two word phrases and is VERY opinionated.  I hear "no" a lot these days, but she is also extra into her Mama, which I secretly love (whenever I find it overwhelming, I remind myself that soon she will be too big to hold and then likely a teenager who hates me).

Miraculously, I just had a normal, 28-day cycle during which I had EWCM and according to the OPKs ovulated.  I didn't get pregnant, but I did feel pretty normal the entire cycle.  I could tell my period was about to arrive because I became insanely irritable... like I knew what was coming out of my mouth was an over-reaction, but there was nothing I could do to stop it.

I'm seriously considering starting a very low dose of estrogen (0.1 mg/day) even though my menopausal symptoms have all but ceased.  I still feel emotionally a bit on edge and I think the estrogen will help.  The dose is so low that it wouldn't prevent me from getting pregnant.  I've read this post over and over and my doctor said the same thing - you can absolutely still get pregnant on HRT.  I've read this study and this one, too.  Does anyone have experience with HRT, whether just in general or getting pregnant while doing HRT?  Any thoughts, advice from a doctor, etc.?  I'm desperate for more information on this topic and it doesn't seem to exist. What I'm really wondering is whether your odds are better trying to get pregnant while on HRT if you still have some ovarian function or whether it is better to not be on the estrogen if you are still ovulating?  I suppose it is time to make an appointment with my OB again...

Happy end of summer to everyone!

What the what?

First of all, Happy 4th of July!  We spent a long weekend (5 days) in Seattle visiting a bunch of friends and had a blast.  The weather was cooler, there is tons of water (obviously), and we enjoyed delicious oysters and great craft beer.  Oh, and Blythe rocked some seriously cute red, white, and blue!

So much attitude these days. I love it (I know I won't when she is 16).

Second, my body is doing some crazy things lately.  I have been feeling better (as I said in my last post). I saw my OB to talk HRT on 6/28.  We developed a plan, talked next steps, and I promptly came back to work and got my period.  She also re-ran my FSH since I was feeling better and it was 7.7.

7.7!  From 59.

This swing fits with what every doctor has said to me - DOR/POF is unpredictable.  I could have these swings regularly, it could have been the miscarriage, they just don't know.  So, we'll see. In the meantime, I feel better.  I'm less irritable, I feel positive again, I'm less snappy (poor R), and I just feel like me.  I can't ask for much more than that.  For now, we will hold off on HRT and see what happens.

Chin Up!

I'm not sure what has changed since my last two posts, but I'm happy to report that I'm feeling much better. The malaise that has been hanging over me since my miscarriage has, for the most part, lifted.  I've decided that despite the horrible test results I got, I'm not giving up on my body.  I refuse to believe that I can go from regular cycles to menopause with one miscarriage, even if that makes me a fool.

So, I'm back on all of my supplements, the herbs recommended by my acupuncturist, and I'm going to see my OB next week about hormone replacement therapy (HRT).  I'm also going to see a local NP who specializes in natural HRT.  If I'm going to start pumping my body full of hormones, I'm going to do some research first.

Whether it is the shift in my attitude or an actual change in my body or the herbs/supplements, I haven't had a hot flash in two weeks and my other symptoms have gone away.  Like writing in the early days of pregnancy, I feel like a fool for publishing this post in some ways.  I know what my numbers are.  I know what the odds are of ever getting pregnant.  And I know that I'm in perimenopause.  But I'm not giving up.

In the meantime, how could I stay sad too long with this sassy, adorable one in my life? 

I also ran another marathon last weekend.  While I have always enjoyed running and have never had an issue with mental toughness, in the two races I've done this year, I've had absolute mental collapses around mile 18.  I become really negative, I've shed tears (crying and running do not go well together), and I've questioned whether I can finish (even though there is no doubt than I can physically).  I've concluded that marathoning is something I am really not enjoying right now, so I'm taking a break.  I'm still going to run, but I'm going to do more pilates and swimming and mountain biking and things that I'm actually enjoying.

So, that's the update.  Call me crazy for not just throwing in the towel, but I'm just trying to keep things real and honest on this blog.  So there it is.

The "M" Word

I've known this day was coming since my dreaded diagnosis in early 2013 of premature ovarian failure / diminished ovarian reserve.  I'm 10 weeks out from my miscarriage and still no sign of my period.  I gave in and had a blood test run last week to check Estradiol levels and FSH.  Given the recent hot flashes I've been experiencing, the results are not surprising:

Estradiol: undetectable
FSH: 59

I'm officially in perimenopause.

How I can go from being pregnant to menopause in one cycle is completely baffling (especially since I'd had 3 normal cycles prior to the pregnancy).  But I have.  As explained by my OB, this doesn't mean I won't have cycles again as hormone levels tend to fluctuate, but I should assume that my baby-making days are over.  I'm going to start hormone replacement therapy.

Menopause.  This is something that my Mom talks about.  That women in their 50s deal with. How am I here?

Nevertheless, I am.  Please don't think for one second that I don't count myself lucky every time I look at Blythe, think about Blythe, kiss her cheeks, hug my husband, etc.  Over the past three years we have faced infertility, failed infertility treatments, a stillborn daughter, me almost dying from a blood clot in pregnancy, a miscarriage, a myriad of health concerns, and, most importantly, the birth of our living daughter.  She is a miracle and I count my lucky stars every day for her life.

But does that change the fact that I dream of having another living child?  Not at all.

I'm an only child and I loved my childhood. I think we can give B a wonderful upbringing on her own. But I really would have liked her status as our solo living little one to have been our choice.  I'm resenting the fact that this decision has been made for me, and frankly in such a cruel way.

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I have the impression that most of my readers are here because we share the common experience of losing a baby, but if any of you out there have experience with POF/DOR. I'd love to hear your thoughts/experiences.  Have you had wild fluctuations in hormone levels?  Any advice/guidance?