Showing posts with label Resources. Show all posts
Showing posts with label Resources. Show all posts

Thursday, October 15, 2015

Pregnancy and Infant Loss Remembrance Day

If you are reading this blog, I suspect you already know that today is Pregnancy and Infant Loss Remembrance Day and that October is SIDS, Pregnancy and Infant Loss Month.  I know that all of us who have lost a baby or babies think of them every day, but I really love that there is a special day to honor those babies and our losses and do hope that awareness grows for these events.

Two weeks ago, we attended the Now I Lay Me Down to Sleep walk in Littleton, Colorado. My parents joined us, as did a friend from my support group (and her husband and baby girl).   It was a somber experience (of course) and so wonderful to set aside a few hours to just reflect and both celebrate and allow ourselves to be sad about Quinn.  They read the names of all the babies who had been lost by attendees and it really meant to much to just hear her name.  It was heartbreaking to hear hers and so many others (and so many families with multiple names that were read).

What I didn't do that I still want to do this month is go back and look through Quinn's box (incidentally, the box that NILMDTS gave us in the hospital). I haven't looked at her photos in months and somehow I feel like I am doing a disservice to her memory.  That said, sometimes I just can't bring myself to open up the floodgates for the grief again.  I know it is good to do from time to time, but it hasn't felt like the right time yet...



I woke up to a very sweet e-mail from a friend this morning telling me she is thinking of me and attaching the image below, which is from a line of cards.  These cards were created by Dr. Jessica Zucker, a psychologist and writer who specializes in women's reproductive and maternal-fetal health.   I'm not one to drop F-bombs often, but I did appreciate the message and the statements certainly resonated with me -- it is amazing what people think will help to say.


What I'm trying to do this month is be especially joyful about my current situation (and particularly for that nugget pictured above).  I have a happy, healthy, fun, beautiful little girl and the best husband.  I have a great job and a comfortable home and life is very, very good.  Every morning when I get B from her crib, I give thanks for her and the joy she has returned to our home and our hearts.  She is such a light.  So even with the sadness that bubbles up more often than I would like, and especially this month after events like the walk, I know just how good things are.

I'm thinking of you all... while I may not know you outside of our online connection, I think of you all often, wonder how you are doing, love reading about your activities and families, and so greatly value this community that has taken me in and pulled me through some really hard times.

 

Friday, December 12, 2014

"A Photo of a Stillborn Baby, Proof of Life, and Grief and Memory"

This piece appeared in the New York Times yesterday and just hit home in the most poignant way.  The author describes her experience having a stillborn son, specifically describing her feelings about having a photo of Dylan.  The last paragraph really struck a chord:

I have often looked at that photo when I have felt ungrounded and alone, because this is the life work of bereaved parents — learning to inhabit, from time to time, a kind of necessary solitude, one that permits us to cull grace from agony. It is in this exercise that we can beat back despair and permit absence to underscore a beautiful presence as we gather ourselves and move forward. I remember. David remembers. He existed; he was here; he is here still.  
I sometimes feel this way about L.  We have so few tangible things that represent her and so few people talk about her that sometimes I worry she will just be forgotten or that she didn't really exist to anyone but me and R.  The entire article is included below.


A Photo of a Stillborn Baby, Proof of Life, and Grief and Memory

When I heard my brother, a writer, read an excerpt from his book about a character’s memory of the stillbirth of his baby sister, I almost fell to my knees. The scene was a gift; the private, unspoken and unseen blossoming into the public and documented. There was a him. My son Dylan, stillborn after days of labor, existed, and was remembered.
My brother, David Shafer, author of “Whiskey Tango Foxtrot,” wrote the scene based on a photograph taken by a forward-thinking member of the hospital staff after my labor with Dylan. I was well into my third trimester when a blood-clotting disorder caused placental abruption, and I knew he would not be born alive before I went into labor.
As I write this, I recall being in labor. I am struck by my fractured memories, of how much of my labor and delivery was spent fighting to be truly present in that room, of how aware I was that his stillbirth would result in the kind of metaphysical scar that forever changes us, and how dual was my struggle: to keep him and to birth him at the same time.
How do we hold on to what we have loved and lost? To help, the hospital gave me a memory box. There were so few items to share with others; to my mother I gave a tiny heart to be hung on a chain, but we kept everything else, including a photograph.
Immediately after my loss, just discharged from the hospital, I sat disheveled on my bed holding this photo out to my brother David, who had flown across the country instantly when I needed him in the full snowy depths of winter.
Why did hearing him read the scene affect me so deeply? For a decade since the stillbirth, I’d imagined a shared community around losses like mine, though such hope had been whittled away. When I heard the scene, the hope suddenly regained vivid and sharp focus. In permanently recording the loss of my son, David helped me with the sieve-like quality of memory and its impermanence, which operate within a wider social taboo telling us not to dwell on our loss, or infect others with our sorrow.
After “Whiskey Tango Foxtrot” was published, David wrote to me about the photograph that inspired the scene: “It was a Polaroid picture. Those always make the subject seem ephemeral, like a fleeting memory. So when I saw this Polaroid of a stillborn baby held by his still-living mother — my nephew; my sister — I was seeing as much a ghost, as much a spirit, as I will ever see. The image stayed with me for years; and one day I wrote it down. That is a picture of him, there was a him.”
Proof of existence is essential to integrating loss, and this is the power of documentation. About that photograph: I have been cautious about sharing such a particular treasure. Writing here is the first time I have ever revealed publicly that it exists. Cheryl Haggard is co-founder of Now I Lay Me Down to Sleep, a nonprofit that provides remembrance photography for families facing infant death. She says that pictures may provide parents with a sense of peace and healing because they give the bereaved a way to share their child with family and friends. She explains that from these photographs people are able to learn that these babies are important in the life of a family even though they are not physically present.
Much is captured in my Polaroid shot. As I held my dead son, I tried to trace what the memory of his physical self would be for me. I knew that he was dead, but still in his body I saw all potential that had been and gone, and even that seemed beautiful to me; I felt his radiance pulsing from him like waves of heat from stone.
I have often looked at that photo when I have felt ungrounded and alone, because this is the life work of bereaved parents — learning to inhabit, from time to time, a kind of necessary solitude, one that permits us to cull grace from agony. It is in this exercise that we can beat back despair and permit absence to underscore a beautiful presence as we gather ourselves and move forward. I remember. David remembers. He existed; he was here; he is here still.

Tuesday, December 9, 2014

Husbands & Loss

R and I finally decided it was time to take a few classes at the hospital (prompted by the fact that this is the last opportunity before our induction... nothing like waiting until the last minute).  Last week we took Infant Safety together, I took Baby 101 (R was traveling and missed it), which taught swaddling, bathing, diapering, and basic newborn care, and R went to Daddy Boot Camp over the weekend.

To tell the truth, we were both reluctant to take any classes. I am an only child and neither of us baby-sat much or has a lot of experience with children, but I was really nervous about sitting in a class with a bunch of parents-to-be who can't relate to anything we've been through.  I dreaded our situation with L coming up somehow and not knowing how to respond (and frankly, to having to respond and totally freaking out all of the other parents - ha).

Past pregnancies, L, etc. did not come up at either Infant Safety or Baby 101.  But it did come up in Daddy Boot Camp.  The class is much more hands-on and personal and started with each guy giving a little background on themselves.  R would never have shared L's story without prompting (and he didn't share any details), but another Dad shared that he and his wife lost a baby at 22 weeks last year and this prompted R to mention our story.  Apparently the other Dad came over and talked to R and they are going to get drinks this week to talk further.

This is all a long introduction into the fact that I've thought on numerous occasions how differently R and I have handled everything in the last year.  I think he felt like he had to be strong and stable for me.  And he is a problem-solver by nature, so he wanted to assess the situation and figure out the steps we could take to "make things better."  He spoke to his family and maybe a friend or two about what happened, but he didn't go to a therapist or a support group.  And truthfully, we talk less about L at home than you might think - my suspicion is that we both hesitate to bring her up all the time because we don't want to upset the other person.

When R came home from class, he immediately shared that it was surprisingly emotional.  He said it was very hard to be back in the hospital again (the class was just off the labor and delivery floor), to talk about babies, and to hold the babies, particularly since they were all around the same age that L would be (as part of the class, alums bring in their babies so the men can practice comforting them, changing diapers, etc.).  It caught me off-guard to hear him express his emotions about the class and it also prompted a really good conversation about L, about how we are both still so apprehensive about getting excited about this pregnancy, about how we want to handle discussing L in the future, about how we might finally spread L's ashes somewhere, etc.  It was so nice to talk about our fears and worries and we both agreed that we need to do this more.

This has turned into quite the rambling post, but this week was a reminder that we are both actively grieving for L.  Even if it feels odd to talk about it when we are hopefully on the brink of something wonderful happening, we still need to do it.

Do any of you have thoughts on communicating about grief with your significant other?  Any tips or advice?

_____________________________________________________________

On a different note, has anyone read the book "Someone Came Before You"?  I've been thinking of ordering it and would love to hear your thoughts.

Friday, June 20, 2014

Amy Klein's Blog

Have any of you followed Amy Klein's blog on the NY Times website over the last few years?  She's been writing "Fertility Diary" and today wrote a heartbreaking update about the five embryos she got from her last round of IVF and how all of them are genetically abnormal.  I obviously don't know Amy, but I've been following her journey for so long and my heart just breaks for her, the same way it does whenever I read another story of loss or of failed fertility treatments.  If you are going through IVF or other fertility treatments, you might give her posts a read -- she's a great writer and has quite a story.

Friday, May 30, 2014

Return to Zero


26,000 stillbirths occur each year in the United States alone.  With a staggering statistic like that, I'm always amazed that prior to losing L, I didn't know anyone who had experienced stillbirth or even mentioned a friend / family member who had.  That's just one of the reasons I think a film like "Return to Zero" is so very necessary.

"Return to Zero" is a movie that just premiered on Lifetime about a couple who experience a stillbirth with their first child.  I had DVRed the movie when it premiered, but hadn't felt up for watching it until last night... and I am so glad that I did.  The films writer, director and producer, Sean Hanish, and his wife experienced a stillborn baby, which prompted him to write this script.  You can read an interview with him about the movie here and read his perspective on their loss here.

The movie touched on so many things that I think everyone experiences with a stillbirth.... all of the questions about what to do with your baby that you never thought you'd have to answer (holding him/her, funeral services, delivery, etc.), the awkward comments from people, the fact that friends are scared to see you and don't know what to say, the terrible depression that can occur afterward, how hard it is on your marriage, how terrifying the idea of being pregnant again is... I could go on and on.  I love Minnie Driver and thought she did a tremendous job playing the woman who loses her son.

I mentioned to my husband that I thought this was an important film for people to see so they could have some perspective.... he didn't necessarily agree with me and felt like, had this not happened to us, we most certainly wouldn't be watching this movie.  He may be right that we wouldn't seek out a movie like this, but I do think it makes one more compassionate and understanding.

There is also a book inspired by the film that I ordered but have yet to read called Three Minus One. Has anyone read it?  I'm planning to start reading it this weekend.  Has anyone else seen the movie?  What did you think?

Tuesday, April 22, 2014

Tracking Tools

I've always been obsessed with tracking data.  Back before we were TTC, I was an avid marathoner and triathlete (and I'll get back to both of those things someday).  In those days, I loved my Garmin Forerunner (and still do - I'm just moving more slowly and less often these days).  Instead, I'm tracking all sorts of things using a few favorite online tools and apps.  Does anyone have any tools that they particularly like and find helpful?

 Fitbit - A few friends using these convinced me how great they are.  After almost a month of use, I couldn't agree more.  I'm obsessed!  I got the Fitbit One Wireless Activity + Sleep Tracker (I didn't want to announce to the world that I was tracking my steps by wearing a bracelet) and I love tracking my steps and activity.  I'm not using it for sleep tracking, but it certainly motivates me to keep moving and to get outside for some exercise.  You can challenge your friends who have one and see how many steps they've taken -- I'm easily motivated by competition!  This article offers good reviews of other personal fitness trackers.

Ovia Fertility Tracker - Since we are back to TTC and are currently waiting to start IVF (I need to have 2 natural cycles before we can start), I've been using Ovuline.  You record your BBT, cervical mucus, mood, exercise, symptoms, fertility monitor and pregnancy test results and the app aggregates it for you to tell you when your most fertile days are.  You can also track your food consumption (I find this to be a great motivator for healthy eating) and intercourse.  Ovuline has an easy to use app that allows you to record this data in a discrete way - and if you use a Fitbit or a number of other devices, they automatically sync with Ovia.  I know other versions of this (Fertility Friend, Glow) -- has anyone used another one that they love?

Fertility Friend - This tool is similar to Ovia, but it provides additional options that Ovia does not (e.g., fertility monitor, IUI, IVF, ART meds).  I think the BBT chart is much easier to read on this app than it is in Ovia, too.  And I signed up for the VIP membership, which provides access to a number of advanced features that I really like.

Goodreads - This one has nothing to do with fertility or health, but instead reading.  I love being able to look back and see what I've read in the past few years and to see what friends are reading.  It's the first place I go when someone recommends a book so I can see what others have thought and to add the book to my "to read" list.  My only complaint is that you can't have a "secret" bookshelf - I don't like to advertise to all of my Goodreads friends that I have read so many fertility books, so I don't end up tracking those.

Monday, April 21, 2014

Stillbirth Reading


Something I have found incredibly helpful since we lost little L in December is reading about other people's experiences with stillbirth.  I can't decide whether its a terrible thing for my mental state to be reading about other's grief or really cathartic?  I think it is the latter - I don't feel as alone when I know that I am not the only person this has happened to.  Nothing else I've experienced in life has been so isolating.  I'll write more about this in the future, but today I just wanted to share the books/articles I have found most helpful.
  • I can't tell you how many times I've read this beautiful piece by Kate Suddes for Cup of Jo.  Ironically, I first read this when it was published in November of 2013 when I was 5 months pregnant.  I got about 1/3 of the way through the post and stopped because I had not even considered that something so unspeakably awful could happen.  I re-read it just days after losing L and everything Kate wrote resonated with me and still does.  One thing particularly hit home - people pretending nothing had happened. We would run into friends who would just not say anything about our loss (nevermind that I was also hospitalized for 10 days including 3 in the ICU).  It was as if they didn't ask, we wouldn't think about it.  I think of L every minute of every day.  Read this piece!
  • The first book I read was An Exact Replica of a Figment of My Imagination.  Again, it just helped me put into words how I was feeling.  My husband also read this and it really helped him to understand some of the emotions I was feeling that he couldn't relate to.  NPR reviewed it in a way that summarizes the book well and there is an excerpt.
  • The Art of Presence by David Brooks in the NY Times is an amazing article on being present for people going through a tragedy in life.  This isn't specific to infant loss, but we'd all be better off reading the article and taking it to heart.
  • Knocked Up, Knocked Down - A funny and honest memoir of sorts from a woman with first-hand experience with stillbirth and miscarriage.
  • Pregnant Chicken on Stillbirth -This is a good read for some basics on stillbirth.  For example, most people don't know that if you lose a  baby after 20 weeks you have to deliver the baby.  In my case, it was a natural birth without an epidural (not my choice - I couldn't have one because of other medications).  This will help explain some of the details and offers some advice about what you can do for others to help.
I've checked out a bunch of other books from the library on the subject, but these are my favorites.  Has anyone else read anything they found particularly helpful/meaningful?  If so, I'd love to know what it is.

Tuesday, April 15, 2014

Book Review - It Starts with the Egg

I don't know about you all, but I obsessed with reading the latest books and research about infertility.  I particularly enjoy those that offer some practical tips for things that we can do without drugs to improve our chances of conception.  It helps me to think I am doing everything I can to facilitate getting pregnant - it is nice to have control over something through this process.

Image via Amazon
Author Rebecca Fett just published It Starts with the Egg.  After being diagnosed with DOR prior to turning 30, the author, who has a degree in molecular biotechnology and biochemistry and is a practicing lawyer, wanted to do everything she could to improve her egg quality.  I thought I had read everything on this subject, but Ms. Fett opened my eyes to additional (easy) lifestyle changes to improve egg quality.  The following are the key takeaways:
  • BPA - Recycle your plastic Tupperware and buy glass.  This article from The Kitchn offers reviews of various options. Drink from glass containers (Life Factory makes my favorites) instead of plastic water bottles.  Eliminate other plastic items from your kitchen.  Think mixing bowls, measuring cups, coffeemakers (switch to a French press).  This is particularly important if these items are ever heated as the heat releases more BPA.  Only purchase canned food if the can is specifically labeled BPA-free.  The only current product line that is completely BPA free is Eden Organics.
  • Phthalates - Phthalates are known endocrine disruptors and you should do your best to eliminate these from your life.  You'll find most of them in your bathroom in nail polish, cosmetics, lotion, hair products, etc.  The Honest Company makes a number of products that are phthalate-free and this article offers helpful tips on how to eliminate them from your life.  Start with scrutinizing the labels on your perfume, deodorant, shampoo, conditioner, lotion, laundry detergent, etc.  You are looking for the terms phthalate (can be buried in a longer word), DEP, DBP or fragrance.
  • Food - Generally eat organic fruits, vegetables, and meat and avoid processed food.  Depending on your specific issue, going gluten-free may be helpful.  Regardless, you want to stick to low glycemic index foods (particularly grains), which predominantly means whole grains such as quinoa, couscous, kidney beans, lentils, and chick peas. Avoid white flour, pasta, bread - anything that is a "simple carb" containing white flour.  Sugar should also be avoided.  Basically you should be eating the things you know you should eat and that are good for you.
  • Caffeine & Alcohol - Studies vary and everyone has an opinion on this one, but best to avoid both, particularly if you are preparing for an IVF cycle.   
  • DHEA -75 mg day from a reputable source (like a compounding pharmacy).  Mine is prescribed by my RE.
  • COQ10 - 300 mg/day taken in the morning with protein.  
  • Thyroid & Vitamin D - Get both of these checked and get them into normal ranges.
Even if you have read all sorts of books and blogs on this subject, I think there is new information to be gained by reading this book.  Do any of you have recommended reading?  
 
SITE DESIGN BY DESIGNER BLOGS